Members of the WSGSC stablished contact with each state Title V program with the plans of seeking their perceptions of current status of genetic services using Genetic Systems Assessment survey. Assessment was completed in Hawaii in September 2015 after a series of two in-person focus groups were held and analyzed. Focus groups are planned to be held in 2016 via videoconference for other states in the region starting with Washington. Families in our region will benefit when programs are planned based upon knowledge shared by Title V leaders who know what is happening in their states regarding access to genetic specialty care within or outside of medical homes.
Project Lead: Sylvia Mann
Staff Lead: Jacquie Stock