Work Groups

AFFORDABLE CARE ACT FAMILY SURVEY

The WSGSC administered a survey in Hawaii that was modeled after similar surveys developed by NEGC and NYMAC. This online and paper based survey of families of children with special health needs asked about essential health benefits and financing of health care. The results of the survey will provide both a regional and national level understanding of current status of health care and insurance needs for population living with genetic conditions. Other states may consider administering the survey. The surveys are pending analysis.

Project Lead: Sylvia Mann
Staff Lead: Michelle Takemoto

Documents: