About the WSGSC

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WHAT IS THIS PROJECT ABOUT?

The Western States Regional Genetics Services Collaborative is a federally funded project that seeks to improve the health of children living in the western states/territory. By working together as a region to coordinate and increase access to genetic services, the participating states/territory will improve the health of children with disorders detected by the newborn screening blood test, birth defects and with other genetic disorders.

The project has three main goals:

  • Goal A: Establish and maintain the infrastructure needed to support the Western States Regional Genetic Services Collaborative activities.
  • Goal B: Refine, pilot, and evaluate a regional practice model that improves access to specialty genetic services, comprehensive primary care, and care coordination for children with heritable conditions living far away from comprehensive genetics and metabolic centers.
  • Goal C: Increase the capacity of the collaborating states' and territory's public health agencies to perform their genetics-related assessment, policy development, and assurance functions.

How is the project funded?

The project is a cooperative agreement funded by the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Children with Special Health Needs Program, Genetic Services Branch.

Which states are involved in the project?

Six states and one U.S. territory participate in this project. If you would like to learn more about the participating states and territory, click on the State Activities tab in the top menu.